On the 14th Avery went in for another chemo treatment. Everything went smoothly as normal. We love the staff there because they are sooo great with Ave. They have a ton of toys for her to play with and we always end up seeing a few friends up there.
When Avery first started treatment, the staff told me about their Colors of Courage program. If you choose to participate, your child will get a certain colored bead for everything they do during their treatment. At first I didn't think it would be appropriate for Ave because she's so young, but now I think she will love having it when she is older. I've said over and over again that her age is a blessing because I don't think she will remember much about this when she's older. This way she can know exactly what she had to do and how strong she was! Each bead represents either a port access, a course of steroids or test she has to do.
Usually after her chemo treatment we take it easy the rest of the weekend because she is on steroids and is usually pretty cranky. But we weren't so lucky! On Saturday afternoon Avery was acting really cranky and was super clingy. I was just holding her and watching TV and she started feeling really hot. I took her temperature and she was completely normal! I guess my mom instincts kicked in because I definitely felt like something was wrong. For the next hour I kept checking her temperature and it slowly kept going up. Since Avery has a central line we had to take her up to the ER right away. By the time we got there her fever went up to 104!
As soon as we got into the room about 10 different people came in. She was already crying and upset from feeling so crappy and this made her sooo scared. The doctor started talking to us and telling us what they were supposed to do but we couldn't even hear her because of Ave's crying and all the people in the room. Finally everyone went out except the nurses that were supposed to access her port. Normally when they access her port before chemo it takes less then two minutes. This time Avery was so upset and scared and they decided it was a good time for a student to come in and practice on Ave. I know everyone has to learn somewhere but I just felt like it wasn't a good time for someone to be learning. It took her over 15 minutes just to access her port!
Finally they gave Ave some antibiotics and some tylenol to bring her fever down. She started feeling a lot better and calmed down. The ER doctor basically told us that if it's a bacterial infection we would be up there for days to get antibiotics. If it was a virus, Ave would have a fever for the next 10-14 days. After being there for a little over four hours they let us go home. The next morning Ave woke up FEVER. FREE. Not sure what was going on to make her temp go up that much but we were just so grateful that she felt so much better.
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