Life

Here I am again! Apologizing for not keeping those who care up to date. Avery is doing great! We went in again the very end of June for her scans.

First thing we did is go up to the lab for a blood draw. I have a bad fear of needles so I tried to be as calm as I could be for Ave. She did so amazing! She held still and there were no tears.

Waiting with Aunt Caitlin in the waiting room.

After scans, we headed straight to imaging where Avery got her skeletal survey. This is the big one! I stood by the computer monitor when I wasn't by Avery - which in itself is a miracle! The first 3-4 times we had this test done it was traumatizing to say the least. Avery was too young for me to explain what we were doing and all she knew was that she had to be stripped down to her underwear, lay on a cold hard table, and have complete strangers holding her down. She would scream and kick the entire time. After each x-ray an image would pop up on the computer monitor where a technician would check to make sure it was correct and send it to the radiologist who would look over it for signs of LCH.









I watched image after image go through and really paid particular attention to her skull. This is where she had a flare up 6 months ago. I was SO SURE I could see lesions (because I'm an expert right??) I mentally prepared myself for us to go up to clinic and hear the word "treatment" again. I of course, was devastated - but I was not going to be blindsided again like the last time. We stopped to get lunch in the cafeteria while we waited for doctors to go over her scans.

She usually gets whatever she wants when we are there. Can ya blame me?? :)




We headed up to clinic where she had her usual weight, height,  blood pressure and temperature taken and we were taken back to hear the news. Doctor walked in and said, "Everything looks great. Come back in a year." I about fell on the floor!! I guess it teaches me right for thinking I have a medical degree or something. :) We were so ecstatic. Here's to hoping all this becomes a distant memory for her.

 I told her to give me her best "No LCH face!" 

Here are a couple pictures of Avery lately

Started her second year of preschool and is LOVING it! 

Now has a baby sister and they adore each other!