Saturday, January 19, 2013

First Treatment

Friday morning we had an appointment with the oncologist to find out the rest of Avery's test results as well as what type of treatment she would have. Our families were anxious to hear the news from the tests and met us up in clinic. We met with a doctor who told us that all of Avery's organs look normal! She does have what looks like one other tumor on her scapula but the chemotherapy will take care of that. This means that Avery will be able to have "out-patient" treatment.

LCH is prone to coming back if you don't get treatment for at least a year. Avery will be on chemotherapy called vinblastine as well as a significant amount of steroids until almost her next birthday. She will get a little nausea, irritability, intense hunger, as well as swelling and weight gain as side effects.


Avery right before we left for her first treatment. You would never be able to tell she is sick. 


Avery the night after she got her treatment.

Avery handled her first treatment so well and has even started to make friends up at the hospital. It was the first time her port was accessed and she freaked out a little bit over that (I did probably more than her) but she did awesome. I was so proud of her. After she was released we got to go home and all of us took a much needed nap.

I'm so overwhelmed at the outpour of love and support there has been for our family. Some photographer friends of mine were so sweet and sent Avery a few packages yesterday. One was FILLED with mermaid toys. Her favorite disney movie is The Little Mermaid so the smile on her face was huge all night.  I can't thank you all enough for everything you have done. Your prayers have helped Avery as well as me stay strong through this.


This little movie is her going through her mermaid toys. It made me cry seeing her so happy.

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