Second Treatment

This last week Avery caught some kind of virus that gave her diarrhea and the worst diaper rash she's ever had. This has been the worse for her then any of her tests.Thomas was sure that she had an intestinal infection so we took her in to the doctor on Thursday to get tested. Luckily it turned out to be just a virus and she is getting better.

Avery is getting so much better at taking her medicine. We now just crush the pill and put it with her liquid antacid. She is definitely suspicious of any food I try to feed her though! Anything I bring out she makes me take a taste first to make sure there is no medicine in it. The side effects have kicked in. She has been eating at least 5 meals a day and has started swelling in her cheeks and her belly. She's been very irritable so things that normally wouldn't bother her do. She's also VERY clingy. Which of course I don't mind until I have to go to the bathroom or shower. I was not a patient person before this and  I'm learning to be.

Friday afternoon I took Avery in to her second treatment. Her appointments are always scheduled around 11 and her nap time is usually 11 or 12 so I'm usually pretty worried that she will be more irritable. She did so so well. She held perfectly still while they accessed her port and didn't cry at all this time. The nurses were shocked at how good she did for it only being her second time. She never ceases to amaze me.

When the doctor came in she felt Avery's tumor and said that it was definitely softer. A few days after her first treatment I thought that her tumor felt more spongy and was smaller but I didn't know if I was being crazy and just wanted to badly for her to respond to the treatment. Especially since they said it would take a few weeks for the tumor to start shrinking. I'm really hopeful that this means she is responding to the treatment. I will take all of the side effects a thousand times over if this means she is getting better.

Our days now consist of watching a lot of Curious George, making pillow ramps, eating popsicles, and lots of snuggling and on Friday's we go in for treatment. I'm so so so lucky to be this girls mommy!

Avery at her 2nd appointment. She has such a good attitude whenever we are there! You can see her tumor on the left side of her head right by her eye. 

I have been more and more amazed every day at the love and support we are getting. I feel like God is hearing everyone's prayers and that he is definitely working overtime for my sweet girl. Thank you all so much for thinking about us and praying for her.